The MPN Research Foundation is reaching out to the MPN patient community to raise awareness about an opportunity for patients 18 years of age or older with primary myelofibrosis (PMF) or polycythemia vera (PV). Patients who qualify can support research by providing a one-time blood donation from home. The blood sample will be collected by… Read More »HELP ADVANCE MPN RESEARCH FROM HOME AND EARN $50
Special Science Edition The MPN Research Foundation has released it’s first annual Summer Science Newsletter! You can find your copy of the newest edition of the MPN Update linked to the button below. We hope you enjoy our articles on the progress from the 2017 challenge grant winners, a special announcement for MPNRF’s inaugural MPN disease progression… Read More »CHECK OUT MPNRF’S SPECIAL SCIENCE EDITION OF THE MPN UPDATE!
Michelle Woehrle, Steps Down as Executive Director but Continues Fighting for MPN Community I write this from my home, which has become my office now thanks to Covid-19. I want to personally let you know that once a replacement is found, I will be stepping down from the role of Executive Director of the MPN Research… Read More »MPNRF CHANGES COMING
The MPN Research Foundation (MPNRF) will launch a nationwide search for a new Executive Director following an announcement by Michelle Woehrle, the Foundation’s current Executive Director, that she will be stepping back to spend more time with her young children and family. This change comes at the end of a two-year period of transition since… Read More »MPNRF announces leadership transition
The European Hematology Association (EHA) is an annual event that welcomes hematology experts and healthcare professionals worldwide. It provides an opportunity to participate in networking opportunities, learn about the newest data from clinical and translational research, and hear updates on emerging techniques and diagnostic tools in hematology. In previous years the MPN Research Foundation has shared… Read More »MPNRF PRESENTS VIRTUAL EHA POSTER PRESENTATION
HikeMF raises research funds for the closely related rare blood cancers, Myelofibrosis, Essential Thrombocythemia, and Polycythemia Vera, collectively known as Myeloproliferative Neoplasms (MPNs). We are still holding our Hike MF event this year- and we are hoping you will join us! On the weekend of May 30 & 31, enjoy a physically distanced activity and… Read More »ANNUAL MPN FUNDRAISER GOING VIRTUAL
Your copy of the Spring 2020 Newsletter from the MPN Research Foundation is now available. Filled with the latest news from the global MPN community, the Spring 2020 newsletter includes information about MPNRF’s latest investment into the progression of MPNs, the 2019 ASH meeting report, clinical trial highlights, the Interferon Initiative, and more. Click the button… Read More »YOUR SPRING 2020 NEWSLETTER IS HERE!
Due to the global pandemic, MPNRF has fielded questions and dealt with the anxiety and unease of the MPN patient community. We have put together a resource page, linking to many wonderful pieces that have been produced by other advocates and the researcher community. We want to build on this by hosting a Twitter chat on the… Read More »MPN AND COVID-19 TWITTER CHAT
CURE Talks Cancer, a weekly podcast from CURE Magazine, recently welcomed doctor-patient duo Dr. Ruben A. Mesa, director of the Mays Cancer Center at UT Health San Antonio MD Anderson, and Antje Hjerpe, a patient diagnosed with essential thrombocythemia in 1992. The pair discuss myeloproliferative neoplasms – what they are, how they’re treated, and how patients can talk to… Read More »CURE TALKS CANCER HOSTS MPN PATIENT-DOCTOR DUO
After Nora Sutton’s step-father Pete was diagnosed with Myelofibrosis she decided to do something about it. Knowing that more research is needed to provide better care and treatments for MPD patients, Nora took it upon herself to sign up for the Hartford Half Marathon in October. Money she raises will go to MPD Foundation to… Read More »FOR PETE’S SAKE: AN MF PATIENT’S STEP-DAUGHTER GOES AFTER A CURE FOR MYELOPROLIFERATIVE DISORDERS
