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Educate. Empower. Impact.

Are you ready to make a real difference in MPN research and advocacy?
Join our MPN Pathways: Empowered Voices in Research Training Series, a comprehensive program designed to educate, engage, and empower patients and caregivers. This series is your gateway to becoming a knowledgeable advocate who can influence and impact the future of MPN research.

PROGRAM DURATION: 
July 2024 –
September 2026

FORMAT:
Live quarterly webinars & recordings on-demand 

CERTIFICATION:
Certification received upon completion

Upcoming Webinar

Upcoming Session: Empowered Voices in Research

Patients and Caregivers’ Guide to Scientific Presentations 

June 18th, 2026 5 – 6 PM CST 

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Tyler Parsons Headshot

Meet our expert speakers – Drs. Amielle Moreno and Tyler Parsons

Amielle Moreno, PhD Scientific Content Manager, MPN Research Foundation  

Dr. Moreno specializes in translating complex scientific research into clear, accessible information for patients and caregivers, helping communities engage more confidently with research.   

Tyler Parsons, PhD MPN Researcher and Patient Advocate 

Dr. Parsons is both an MPN patient and a biomedical researcher focused on MPN biology and disease progression. He brings a unique perspective that bridges scientific research and patient understanding. 

Join us for MPN Pathways: Empowered Voices in Research – A patients and caregivers’ guide to scientific presentations. Understanding myeloproliferative neoplasm (MPN) research can feel overwhelming, especially when you are learning as much as you can for yourself or a loved one. This interactive session will explain the various ways research is presented and explain why scientific presentations can be challenging to follow. From abstracts to posters, webinars to scientific publications, we will share tools to help you identify the key messages scientists are trying to convey. After this session, we hope you can interpret more meaning behind research you encounter and feel confident forming questions. Whether you are new to MPN research or want to build on what you already know, this program is designed to help you navigate scientific information with more clarity and ease. No scientific background is needed — only an interest in understanding the research that shapes the future of MPN care.  

Key Learning Objectives:

  • Recognize why scientific presentations can feel difficult to understand and feel more confident that confusion or overwhelm is normal and not a personal failure. 
  • Identify the different types of scientific presentations (abstracts, posters, talks, papers, webinars) and understand what information each is designed to convey and for whom. 
  • Break down a scientific presentation into its core components—background, study design, results, and conclusions—to identify the main message without needing technical expertise. 
  • Interpret how scientists communicate evidence and uncertainty, including why cautious language is used and why findings can be meaningful even when not definitive.
  • Apply practical strategies immediately to engage more confidently with scientific information, including asking clarifying questions, taking effective notes, and identifying what information is most relevant to them. 

MPN Pathways – Schedule

Year 1 : Foundational Knowledge

Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation 

Q4 2024
Speaker:  Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation

Year 2 : Clinical Insights and Patient Advocacy

Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Recording / Evaluation

Q2 2025
Speaker: Sarah Wicks
FDA 101
Recording / Evaluation

Q3 2025
Speaker: Patty Spears
Patients and Caregivers’ Voices in Research
Recording / Evaluation

Q4 2025
Speaker: Dr. Jane Perlmutter, PhD, MBA
Clinical Trial Protocol 101
Recording / Evaluation

Year 3 : Advanced Topics and Practical Skills

Q1 2026
Speaker: Emily Largent, JD, PhD, RN
Informed Consent
Recording / Evaluation

Q2 2026
Speakers: Drs. Amielle Moreno and Tyler Parsons
A Patient’s Guide to Scientific Presentations
Registration / Evaluation

Q3 2026
Speaker: Dr. Mesa
Patient-Reported Outcomes and Quality of Life in MPNs

Certification Program

The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy: 

  1. WATCH – Participants must view all 9 webinars in the series to complete the program.
  2. EVALUATE – Participants will also be required to complete an online evaluation of each webinar after they attend the session live or view the recording which will be made available within the Webinar Library.
  3. CERTIFIED – Participants that complete all 9 webinar evaluations will receive an MPN Pathways: Empowered Voices in Research certificate via email that they can print and proudly display!


Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!

Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.

Addressing your concerns

Time commitment
Our quarterly webinars and on-demand modules allow you to learn at your own pace. Each session is designed to be comprehensive yet manageable.
Content complexity
We break down complex topics into easy-to-understand segments, ensuring that everyone, regardless of background, can follow along and benefit.
Impact & Relevance
Every session provides actionable knowledge and resources directly applicable to your advocacy efforts. Your involvement can significantly shape the future of MPN research and treatment.
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Thank you to our sponsors

In collaboration with

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We are also deeply grateful to the individual donors whose generosity supports the MPN Research Foundation’s mission and programs like MPN Pathways: Empowered Voices in Research.