Educate. Empower. Impact.
Are you ready to make a real difference in MPN research and advocacy?
Join our MPN Pathways: Empowered Voices in Research Training Series, a comprehensive program designed to educate, engage, and empower patients and caregivers. This series is your gateway to becoming a knowledgeable advocate who can influence and impact the future of MPN research.
PROGRAM DURATION:
July 2024 –
September 2026
FORMAT:
Live quarterly webinars & recordings on-demand
CERTIFICATION:
Certification received upon completion
Upcoming Webinar
SESSION 1:
Intro to MPN Research Foundation & Myeloproliferative Neoplasms 101
Thursday, September 12th, 2024
5pm Central Time
Speaker: Sara Douglas, MSN RN OCN
Associate Director of Patient Engagement
MPN Research Foundation
This session introduces MPN Research Foundation (MPNRF)’s history and mission followed by a full understanding of Myeloproliferative Neoplasms (MPNs), including essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF).
- Introduction to MPN Research Foundation: Overview and history of our organization.
- Introduction to MPNs: Review risk factors, genetic mutations, and symptoms.
- Diagnosis and Treatment: Get the latest on diagnosis processes and treatment guidelines.
- Resources: Discover support available for you and your loved ones.
- Meet Our Expert Speaker: Sara Douglas MSN RN OCN, Associate Director of Patient Engagement, will lead the session and answer your questions during an interactive Q&A.
Webinar Library
Webinar Recordings
Webinar recordings will be posted here post event
- Session 1: Intro to MPN Research Foundation & MPN 101
- Session 2: Coming Soon
Evaluations
Webinar Evaluations Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.
- Session 1: Intro to MPN Research Foundation & MPN 101
- Session 2: Coming Soon
MPN Pathways – Schedule
Year 1 : Foundational Knowledge
Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation
Q4 2024
Speaker: Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Registration / Evaluation
Year 2 : Clinical Insights and Patient Advocacy
Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Q2 2025
Speaker: TBD
FDA 101
Q3 2025
Speaker: TBD
Patients and Caregivers’ Voices in Research
Q4 2025
Speaker: TBD
Clinical Trial/Research Protocol 101
Year 3 : Advanced Topics and Practical Skills
Q1 2026
Speaker: TBD
Informed Consent
Q2 2026
Speaker: TBD
A Patient’s Guide to Scientific Presentations
Q3 2026
Speaker: TBD
Patient-Reported Outcomes and Quality of Life in MPNs
Certification Program
The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy:
- WATCH – Participants must view all 9 webinars in the series to complete the program.
- EVALUATE – Participants will also be required to complete an online evaluation of each webinar after they attend the session live or view the recording which will be made available within the Webinar Library.
- CERTIFIED – Participants that complete all 9 webinar evaluations will receive an MPN Pathways: Empowered Voices in Research certificate via email that they can print and proudly display!
Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!
Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.
![057 MPN Pathway H2[1]](https://mpnresearchfoundation.org/wp-content/uploads/2024/08/057_MPN_Pathway_H21.jpg)
Thank you to our sponsors
In collaboration with
