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Educate. Empower. Impact.

Are you ready to make a real difference in MPN research and advocacy?
Join our MPN Pathways: Empowered Voices in Research Training Series, a comprehensive program designed to educate, engage, and empower patients and caregivers. This series is your gateway to becoming a knowledgeable advocate who can influence and impact the future of MPN research.

PROGRAM DURATION: 
July 2024 –
September 2026

FORMAT:
Live quarterly webinars & recordings on-demand 

CERTIFICATION:
Certification received upon completion

Upcoming Webinar

ChristinaPersaud web
SESSION 3: MPN Clinical Trials 101
January 23rd, 2025

5pm – 6pm Central Time
Speaker: Christina Persaud
Senior Manager of Research Programs & Insights at MPN Research Foundation 

Meet Our Expert Speaker:
Christina Persaud brings 17 years of clinical research experience to her role, fueling her passion for advancing MPN research and clinical trial awareness. She leads efforts to engage healthcare providers, patients, and community oncology sites, fostering collaboration to drive meaningful progress in the field.

During this session, participants will: 
Review a basic overview of Myeloproliferative Neoplasms (MPNs) and the role of clinical trials in advancing treatment options. Learn the phases of clinical trials, the process of conducting them, and the criteria for patient participation, including potential benefits and risks. 

  • Learn significance of clinical trials in developing new therapies and improving outcomes for MPN patients.
  • Learn about reliable information sources for those considering or involved in clinical trials.
  • Learn methods to engage with ongoing research, advocate for clinical trials, and support MPN patient communities

Webinar Library

Evaluations

Webinar Evaluations
Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.

MPN Pathways – Schedule

Year 1 : Foundational Knowledge

Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation 

Q4 2024
Speaker:  Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation

Year 2 : Clinical Insights and Patient Advocacy

Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Registration / Evaluation

Q2 2025
Speaker: TBD
FDA 101

Q3 2025
Speaker: TBD
Patients and Caregivers’ Voices in Research

Q4 2025
Speaker: TBD
Clinical Trial/Research Protocol 101

Year 3 : Advanced Topics and Practical Skills

Q1 2026
Speaker: TBD
Informed Consent

Q2 2026
Speaker: TBD
A Patient’s Guide to Scientific Presentations

Q3 2026
Speaker: TBD
Patient-Reported Outcomes and Quality of Life in MPNs

Certification Program

The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy: 

  1. WATCH – Participants must view all 9 webinars in the series to complete the program.
  2. EVALUATE – Participants will also be required to complete an online evaluation of each webinar after they attend the session live or view the recording which will be made available within the Webinar Library.
  3. CERTIFIED – Participants that complete all 9 webinar evaluations will receive an MPN Pathways: Empowered Voices in Research certificate via email that they can print and proudly display!


Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!

Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.

Addressing your concerns

Time commitment
Our quarterly webinars and on-demand modules allow you to learn at your own pace. Each session is designed to be comprehensive yet manageable.
Content complexity
We break down complex topics into easy-to-understand segments, ensuring that everyone, regardless of background, can follow along and benefit.
Impact & Relevance
Every session provides actionable knowledge and resources directly applicable to your advocacy efforts. Your involvement can significantly shape the future of MPN research and treatment.
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