PROGRAM DURATION:
July 2024 –
September 2026
FORMAT:
Live quarterly webinars & recordings on-demand
CERTIFICATION:
Certification received upon completion
Upcoming Session: Empowered Voices in Research
Patients and Caregivers’ Guide to Scientific Presentations
June 18th, 2026 5 – 6 PM CST
Meet our expert speakers – Drs. Amielle Moreno and Tyler Parsons
Amielle Moreno, PhD Scientific Content Manager, MPN Research Foundation
Dr. Moreno specializes in translating complex scientific research into clear, accessible information for patients and caregivers, helping communities engage more confidently with research.
Tyler Parsons, PhD MPN Researcher and Patient Advocate
Dr. Parsons is both an MPN patient and a biomedical researcher focused on MPN biology and disease progression. He brings a unique perspective that bridges scientific research and patient understanding.
Join us for MPN Pathways: Empowered Voices in Research – A patients and caregivers’ guide to scientific presentations. Understanding myeloproliferative neoplasm (MPN) research can feel overwhelming, especially when you are learning as much as you can for yourself or a loved one. This interactive session will explain the various ways research is presented and explain why scientific presentations can be challenging to follow. From abstracts to posters, webinars to scientific publications, we will share tools to help you identify the key messages scientists are trying to convey. After this session, we hope you can interpret more meaning behind research you encounter and feel confident forming questions. Whether you are new to MPN research or want to build on what you already know, this program is designed to help you navigate scientific information with more clarity and ease. No scientific background is needed — only an interest in understanding the research that shapes the future of MPN care.
Key Learning Objectives:
Webinar Evaluations
Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.
- Session 1: Intro to MPN Research Foundation & MPN 101
- Session 2: The Lifecycle of Drug Development
- Session 3: MPN Clinical Trials 101
- Session 4: FDA 101
- Session 5: Patient & Caregiver Voices in Research
- Session 6: Clinical Trial Protocol 101
- Session 7: Informed Consent
Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation
Q4 2024
Speaker: Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation
Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Recording / Evaluation
Q2 2025
Speaker: Sarah Wicks
FDA 101
Recording / Evaluation
Q3 2025
Speaker: Patty Spears
Patients and Caregivers’ Voices in Research
Recording / Evaluation
Q4 2025
Speaker: Dr. Jane Perlmutter, PhD, MBA
Clinical Trial Protocol 101
Recording / Evaluation
Q1 2026
Speaker: Emily Largent, JD, PhD, RN
Informed Consent
Recording / Evaluation
Q2 2026
Speakers: Drs. Amielle Moreno and Tyler Parsons
A Patient’s Guide to Scientific Presentations
Registration / Evaluation
Q3 2026
Speaker: Dr. Mesa
Patient-Reported Outcomes and Quality of Life in MPNs
The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy:
Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!
Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.