Every patient journey provides new data for researchers and clinicians
MPNs all vary, and patients’ clinical experiences are vastly different. Read their patient & caregiver stories.
*Patient stories represent the first-person accounts of real people living with an MPN and do not represent the views of MPNRF.
Share your story
Your MPN journey matters to us and the MPNRF community! Help others learn more about MPNs, diagnosis, treatment, and research through shared experiences.
Become a certified MPN Research Advocate
Ready to make a real difference in MPN research and advocacy? Join our MPN Pathways: Empowered Voices in Research Training Series, a comprehensive program designed to educate, engage, and empower patients and caregivers.
Join the MPN Research community
Be the first to know about the latest news and advancements.
Want to assess or improve your care?
Our MPN Patient Bill of Rights resource can help you think through the core elements central to quality MPN patient care.
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