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MPN Support Group Leaders - We need your help!
Please complete the MPN Support Group Leader Survey to help the MPN Research Foundation better understand the needs of support groups and improve access to resources for patients, caregivers, and healthcare providers.
Engaging support groups is a vital part of advancing the MPN Research Foundation’s mission to stimulate original research and pursue new treatments and ultimately a cure for essential thrombocythemia, polycythemia vera, and myelofibrosis, collectively known as myeloproliferative neoplasms (MPN). By fostering connections among patients, caregivers, and advocates, support groups create an empowered community that amplifies the patient voice and provides invaluable insights to researchers.
These groups also play a crucial role in disseminating credible, research-backed information, ensuring the MPN community is informed and equipped to participate in clinical studies, contribute to advocacy efforts, and support innovative treatment development. Together, we are building a bridge between science and the lived experience of patients, expanding the global effort to realize breakthroughs in care and cures for MPNs.
Patients, You’re not alone – Find a Support Group Today!
If you have been diagnosed with an MPN, it’s important to know that you’re not alone. In addition to your physician and family members, you have the support of a large and growing MPN community that understands the challenges you face.
MPN Research Foundation is proud to play a vital role in the MPN community. We’re committed to working alongside researchers and physicians to provide comprehensive support for MPN patients and their families, offering the advocacy, education, and resources you need to find hope for a better tomorrow.
- Support Hotlines – Speak one-on-one with counselors, resource specialists, or information specialists who are available to provide emotional support and assist you in finding local, regional and national resources.
- Support Groups – Find MPN patient support groups in your area.
- Online Support Groups – An easy solution to meet other people with PV, ET, and MF.
- Peer-to-Peer Support – Free personalized peer-to-peer support for cancer fighters, survivors, & caregivers provided by MPNRF partner, Imerman Angels.
- Patient Resources – Discover articles and other resources for MPN patients.
- International Resources – Connect to various organizations outside the U.S.
If you are unable to locate an existing support group that meets your needs in your community, consider starting your own. Establishing a support group for people who have been directly affected by ET, PV, or MF takes a great deal of commitment and dedication but is a highly rewarding activity. It provides you an opportunity to connect with others who share similar experiences.
Have questions about starting your own MPN patient support group? Contact us via email and view MPN Research Foundation’s Starting an MPN Patient Support Group guide to learn more.
