If you are unable to locate an existing support group that meets your needs in your community, consider starting your own. Establishing a support group for people who have been directly affected by ET, PV, or MF takes a great deal of commitment and dedication but is a highly rewarding activity. It provides you an opportunity to connect with others who share similar experiences.
Have questions about starting your own MPN patient support group? Contact us via email and view MPN Research Foundation’s Starting an MPN Patient Support Group guide to learn more.