Board of Directors
The MPN Research Foundation Board of Directors provides governance and guides direction for MPN Research Foundation, including prioritization of appropriate MPN research and patient advocacy activities.
The MPN Research Foundation Board is comprised of a diverse and dedicated group of industry and non-profit leaders, MPN patients and MPN patient family caregivers.
MPNRF Board Members
Barbara Van Husen
- CHAIRMAN
- Barbara on why we're hopeful
Barbara Van Husen
Ms. Van Husen has been a consultant in Information Technology and Organizational Development for 30 years, specializing in work for nonprofits which have included the University of Chicago, the Art Institute of Chicago, and the Smithsonian Institution. She was a Principal for Chicago-based consulting firm TSG, Inc. for 17 years until its acquisition by Denver-based Ciber, Inc. in 1997. Her non-profit board affiliations include management roles in child welfare (Lutheran Social Services of Illinois), children’s literacy (Reading is Fundamental in Chicago) and her current role as Board President of the Chicago-based MPN Research Foundation.
Ms. Van Husen has B.S. in Mathematics from the University of Illinois and an M.S. in Information Sciences from the University of Chicago.
Kapila Viges
- CHIEF EXECUTIVE OFFICER
- MPN Research Foundation
Kapila Viges, CEO
Kapila transitioned to the leadership role of the MPN Research Foundation in September 2020, at the 20th Anniversary mark of the founding of the organization. Most recently, Kapila has been leading a pipeline and launch strategy practice at a leading pharmaceutical management consulting firm. Working with emerging biotechs transitioning from clinical to commercial stage, Kapila has been executing launch strategy and planning for oncology and rare disease therapeutics.
Prior to that, Kapila led biotech incubation and seed funding programs in academia and the public sector, defining and implementing innovative approaches to accelerating therapeutic candidates and medical technologies from the lab into the clinic. She led the launch of over 20 bio and med tech companies spinning out of academia and served as the life science portfolio lead for venture funding.
Kapila brings experience from startups, public, non-profit, academic, and industry sectors, as well as engineering training, to execute effective approaches to advance therapies for patients with high unmet needs.
Dave Boule
- TREASURER
-
Retired Partner, Ernst & Young
MPN Patient
Ed Bartholemy
- DIRECTOR
- Retired Consultant
Ed Bartholemy
Ed Bartholemy has served on the Board of Directors for many years, and has been integral in supporting and funding MPN Research Foundation research projects.
Ed is a compassionate and dedicated husband who took on the role of caregiver for his wife, Nancy Bartholemy, who battled Myelofibrosis for over 40 years.
Despite the challenges they faced, Ed emerged as an influential figure within the MPN community, making a positive impact through his heartfelt sharing of their journey on social media.
What sets Ed apart is his proactive approach to creating awareness about Myelofibrosis and supporting others in similar situations. Through poignant posts on social media platforms, he opened up about their experiences, shedding light on the challenges, triumphs, and resilience required in the face of such a condition. Ed utilized Caring Bridge to document and track Nancy’s story, amassing almost 10,000 views during the time he was sharing updates.
By sharing their story, Ed fostered a sense of community among those affected by MPNs, offering a space for individuals to connect, empathize, and draw inspiration from their journey.
Stephanie Cindric, APRN
- DIRECTOR
- Nurse Practitioner, Tampa General Hospital Urology Group
Stephanie Cindric, APRN
Stephanie’s contributions to the field of MPN Research are unique. She is a former ET patient whose family became actively involved with ET research fund raising because of her diagnosis with the goal of bringing hope to all MPN patients.
Stephanie received both her Master of Science in Nursing (MSN) and her Bachelor of Science in Nursing (BSN) from Florida Atlantic University (FAU). She joined Tampa General Hospital (TGH) Urology Group of Florida, formerly known as Urologic Physicians and Surgeons, in 2013, and is a member of the American Association of Nurse Practitioners. Practitioner Council of Palm Beach County.
Brandon Goetzman
- DIRECTOR
- SVP, Blue Vista Capital Management
Brandon Goetzman
Brandon Goetzman is a Managing Principal at Blue Vista Capital Management, a commercial real estate investment management firm headquartered in Chicago that he joined in 2008. He oversees the investment activity for the firm’s middle market commercial real estate investment strategies. Brandon joined the MPN Research Foundation as a director in 2016, has served as the chair of the foundation’s Science Steering Committee, which is focused on the foundation’s strategic investments in MPN research, since 2018, and has served as Co-Chair of the Board of Directors since December of 2024.
Brandon graduated “with distinction” from the University of Wisconsin – Madison in 2008 with a Bachelor of Business Administration majoring in Finance and Real Estate and received the Chairman’s Award from the Wisconsin Real Estate & Urban Land Economics department. In addition to the MPN Research Foundation, Brandon has been passionately involved in other non-profit and mentoring roles including being a board member for the AREIT and Private Equity track programs at the University of Wisconsin – Madison.
Sam Klepper
- DIRECTOR
- SVP Products & Corporate Development, SoundThinking
Pamela Murphy
- DIRECTOR
- VP, Incyte
Pamela Murphy
Pam Murphy has spent the past 25 years building emerging biotechnology companies. She is well-recognized for her ability to improve a company’s access to capital and people, and preserve its corporate reputation during times of crisis and extreme market volatility.
Most recently, as VP Corporate Communication & Investor Relations of Incyte, she played an important role in significantly improving Incyte’s corporate reputation and market capitalization as evidenced by the fact Incyte’s stock price was in the low single digits when she joined the comapny in 2003 and was well above $80 when she retired in April 2015. As importantly, Incyte’s top-tier analyst coverage and core instituional shareholder base have been in place since 2005.
In additon to securing excellent relationships with the investment community, she developed and managed a number of multi-disciplined marketing and communications plans that led to equally strong relationships with other key target audiences for early stage biotech companies including investigators, patient advocacy groups, patients, corporate partners and the media.
Pam is a candid and tenacious team player who is known for a clear focus on the needs of patients and good business outcomes for all. While officially retired from Incyte, and happily focused on becoming a competitive dressage rider, she continues to serve on the Board of Directors for Delaware Bio and provides strategic counsel to emerging life science companies regarding the value of a great reputation.
David Ricci
- DIRECTOR
- Portfolio Manager, William Blair & Co
Andrew Schafer, MD
- DIRECTOR
-
Director, Richard T. Silver Center
for Myeloproliferative Neoplasms - Weill Cornell Medicine
Andrew Schafer, MD
Dr. Schafer is Professor of Medicine in Hematology-Oncology and Director of the Richard T. Silver Center for Myeloproliferative Neoplasms at Weill Cornell Medicine. He is a board-certified hematologist and oncologist, and an authority in the areas of thrombosis, coagulation, platelet and bleeding disorders, and myeloproliferative disorders.
Dr. Schafer is the author of over 220 original articles and the editor of 6 textbooks in the field of hemostasis, thrombosis and hematology, and internal medicine. He edited a book entitled “The Vanishing Physician-Scientist?” and is currently Co-Editor of the Cecil Textbook of Medicine beginning with the 24th edition. He has made original research contributions in the areas of hemostasis, thrombosis, platelet function, vascular cell biology, and myeloproliferative disorders; he was the principal investigator of NIH grants for almost 30 consecutive years.
Dr. Schafer has been President of the American Society of Hematology, President of the Association of Professors of Medicine, is President-Elect of the American Clinical and Climatological Association and has been elected to membership in the American Society for Clinical Investigation (for which he served as Secretary-Treasurer), the Association of American Physicians, and Fellowship in the American Association for the Advancement of Science, the New York Academy of Medicine, and the Institute of Medicine (IOM) of the National Academies. He is a Master of the American College of Physicians. He has served on the editorial boards of a number of major medical and scientific journals, and was the founding editor-in-chief of The Hematologist.
Dr. Schafer received his B.A. from Northeastern University in 1969 and his M.D. from the University of Pennsylvania in 1973. He completed his residency in internal medicine at the University of Chicago and his clinical and research fellowships in hematology at the Brigham and Women’s Hospital (formerly Peter Bent Brigham Hospital) and Harvard Medical School. He was on the faculty of Harvard Medical School, rising to Associate Professor of Medicine, until 1989 when he was appointed Chief of Medicine at the Houston VA Medical Center, Professor of Medicine at Baylor College of Medicine, and Professor of Biomedical Engineering at Rice University in Houston. Dr. Schafer then served as Chairman of the Department of Medicine at Baylor from 1996 to 2002, the Frank Wister Thomas Professor and Chairman of the Department of Medicine at the University of Pennsylvania, and the E. Hugh Luckey Distinguished Professor of Medicine, Chairman of the Department of Medicine at Weill Cornell Medical College, and Physician-in-Chief of the New York-Presbyterian Hospital Well Cornell Medical Center until 2013.
Rebecca Shapiro
- DIRECTOR
- President, Shore Fire Media
Jeffrey Shier
- DIRECTOR