Celebrating the discovery of mutated CALR
What is
essential
thrombocythemia
(ET)?
Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.
Learn more about ETWhat is
polycythemia vera
(PV)?
The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.
Learn more about PVWhat is
myelofibrosis
(MF)?
MF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.
Learn more about MFEvery patient experience is unique and provides new clues for researchers and clinicians.
In our 24-year history, MPNRF has contributed to some of the most influential MPN research discoveries.
Engage with us to ensure that new therapies have the maximum impact on patient outcomes and quality of life.
Download our Voice of the Patient report
Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.
Your investment supports doctors and researchers around the world who are dedicated to finding cures for MPNs.
How to explain MPNs to children
MPN NEWS | June 30, 2025
Explaining a chronic cancer like an MPN to a child can feel overwhelming — especially when the symptoms aren’t always visible. In this new article, pediatric psychologist Dr. Joanna Patten shares expert advice on what to say and how to say it. Learn why late is better than never and how honest, age-appropriate conversations help… Read More »How to explain MPNs to children
Every sample, every step: How Dr. Gabriela Hobbs is rethinking the transplant journey in MPNs
MPN NEWS | June 30, 2025
At the center of translational research, clinical care, and academic leadership, Dr. Gabriela Hobbs, MD is charting a more thoughtful path forward for people living with MPNs. Through collaboration and leadership, she’s transforming every resource into scientific discoveries. “Research can look different in a lot of ways,” Dr. Gabriela Hobbs says with a knowing nod.… Read More »Every sample, every step: How Dr. Gabriela Hobbs is rethinking the transplant journey in MPNs
MPN Pathways: Empowered Voices in Research Bonus Session Summary — What’s Your Why?
MPN NEWS | April 25, 2025
MPN Pathways: Empowered Voices in Research bonus session — What’s your why? At MPN Research Foundation, we are dedicated to ensuring that the patient’s voice is at the forefront of our work. As we grow in our role as a patient-centered research foundation, we continue to take intentional steps to bridge the intersection of patients,… Read More »MPN Pathways: Empowered Voices in Research Bonus Session Summary — What’s Your Why?
Join our community to get the latest research, patient stories, and exclusive content delivered right to your inbox. Plus, when you subscribe, receive the latest NCCN guidelines and resources to support your journey.
JOIN OVER 20,000 SUBSCRIBERS. UNSUBSCRIBE ANYTIME.