Need help with MPN related out of pocket expenses? The PAN Foundation is helping patients with Philadelphia chromosome negative myeloproliferative neoplasms (MPN) afford their out-of-pocket costs. If you’re a patient or caregiver looking for resources to help with your treatment-related costs, we encourage you to learn more about the PAN Foundation and its $3,250 annual… Read More »Need help with MPN related out-of-pocket expenses?
To stay up to date on everything MPNs, patients and their families and caregivers have access to a just updated resource that includes 75 pages of plain language questions, answers, and explanations written specifically for people affected by MPNs. The comprehensive document is based on current clinical practice guidelines created by national leaders in the… Read More »MPN patient guidelines updated by NCCN
Profile: Vikas Gupta, MD, FRCP, FRCPPath Princess Margaret Cancer Centre University Health Network, Toronto, Canada How can we best study transplant vs best available non-transplant therapies in myelofibrosis patients? According to Dr. Vikas Gupta, studies have shown that high-risk myelofibrosis (MF) patients appear to have better survival with hematopoietic stem cell transplants (HCT) than with… Read More »Vikas Gupta, MD, FRCP, FRCPPath
The fight against blood cancers has taken a significant step forward with new research into the GADD45g gene. Researchers have uncovered surprising insights into the role of GADD45g in myeloproliferative neoplasms (MPNs), providing scientists with a laundry list of related proteins to examine for potential therapeutic targeting. A notable study recently published in Nature Communications… Read More »The New MPN Protein: Insights from GADD45g Research
May is Skin Cancer Awareness Month. Research shows a link between skin cancers and MPNs. Diligent screening is crucial for those living with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Skin cancers, particularly non-melanomas, offer an example of how quickly and impactfully research can move to action that saves lives. A recently published… Read More »Skin Cancer Awareness Month: Non-melanoma skin cancer and MPNs
Through a strategic collaboration between MPN Research Foundation and Medscape, people living with myelofibrosis (MF) and their care partners can learn more about MF, then test their knowledge about this chronic blood cancer. In addition to providing basic facts about primary and secondary myelofibrosis, this interactive exercise includes current insight about how to manage your… Read More »Medscape Partners with MPNRF to help MF patients work with their care teams
This spring allergy season, if you suffer from the distraction and annoyance of itchy eyes or nose, imagine that intense itch across your entire body – every day of the year. That’s what many people living with polycythemia vera (PV) and other MPNs experience. Severe, recurrent MPN-related pruritus (the condition of itching) can have a… Read More »Severe Itching Remains an MPN Research Challenge
The transformation of MPNs to blast-phase (BP) is generally associated with poorer long-term survival. A recently published study in Blood Advances looked at outcomes of intensive and non-intensive blast reduction strategies in both the blast phase and accelerated phase of MPNs. Blasts are immature white blood cells found naturally in the bone marrow and circulating… Read More »Reducing Blasts in MPNs
Profile: Belinda Guo, PhD, University of Western Australia One of the impacts MPN research Foundation (MPNRF) has on the global MPN community is the support of young investigators who often bring new ideas and approaches to the study of MPNs. That was true of Dr. Belinda Guo when she received her first funding from us… Read More »Belinda Guo
Today, it is essential for patients to be involved with research and drug developers as they progress through the various stages of bringing a new therapy to market. MPN Research Foundation (MPNRF) is committed to ensuring that patient participation is more than a ticked box for drug approval. We actively work to incorporate the patient… Read More »Patients and Caregivers Play an Active Role in MPN Research
