Annette DeBow, a polycythemia vera patient, will begin hiking the High Sierras on July 15 2010. Her goal is to raise money for MPD research with the MPD Foundation as the recipient of her effort. The Sacramento Bee recently wrote about Annette and her quest and it’s benefit to the MPD community. Annette will undertake… Read More »ANNETTE DEBOW’S TREK FOR A CURE STARTS THIS WEEK!
MPD Foundation board member, Sam Klepper, was interviewed by his son Jake for a recent school project on human diseases. Jake is a 7th grader at Egan Junior in Los Altos, CA. He chose to do a presentation on polycythemia vera because Sam has had PV for several years. We were so impressed with Jake’s… Read More »POLYCYTHEMIA VERA: A PATIENT’S SON REPORTS
The MPD community has been anticipating the release of news on plans for the $5.5 million awarded to study the PV outbreak in Pennsylvania. MPD Foundation funded researchers such as Drs. Ronald Hoffman and Mingjiang Xu are among those selected to investigate various components of the multi-disciplinary research that will be pursued with the award.… Read More »CDC FUNDS MULTI-DISCIPLINARY RESEARCH ON PV
In February, the MPD Foundation launched its first fundraising initiative, Feel the Need – Feed the Cure. All proceeds went to the MPD Foundation for research aimed at finding a cure and better treatment options for polycythemia vera, myelofibrosis and essential thrombocythemia. In response to many people in the MPD community wishing to host an… Read More »UPDATE ON FEEL THE NEED – FEED THE CURE
February 2010 Participants Host: Jay Schmitt Event: Jay owns several Subway stores in the Akron / Cleveland area. for the entire month of February, he will give a percentage of the sales from all of the stores to the MPD Foundation for MPD research Host: Ann Brazeau Event: “An Evening in France”. Guests will enjoy an evening of delicious… Read More »FEEL THE NEED – FEED THE CURE
Posted July 14, 2009 In 2006, Al Bolea passed away from Myelofibrosis. Every year since, his friends and family have gathered to celebrate his life and raise money for MPD research. The Al Bolea Memorial Ride and BBQ will take place on Sunday, August 16th 2009. The scenic rides will be 37.5 and 53 miles… Read More »UPCOMING: AL BOLEA MEMORIAL RIDE AND BARBEQUE
Joyce Niblack may have been the truest friend the MPD community will ever have. She was always there, to answer questions, reassure patients and share information on the latest developments in the field. She worked with the late Dr. Harriet Gilbert to publish the first MPD patient newsletter. She founded and managed the MPD-Net online… Read More »IN MEMORY OF JOYCE NIBLACK
The MPD Foundation acts as a great resource for patients and those wishing to host MPD Patient Support groups across the U.S. and in other countries. Recently, several group coordinators and representatives from the Foundation held a conference call meeting to discuss goals, challenges and successes and to explore ways in which the Foundation could… Read More »THE MPD FOUNDATION GROWS AWARENESS AND OUTREACH TO THE MPD PATIENT COMMUNITY
It is clear in the research community that there’s a great deal of excellent work happening in the direction of new therapies for MPD patients. This is not only occurring with the researchers funded in the MPD Research Alliance, but also in other academic labs and drug companies. With this in mind, and in anticipation… Read More »MPD FOUNDATION INITIATES RELATIONSHIP WITH THE FDA
