Welcome to the MPN Research Foundation community!

As an organization founded by patients for patients, we strive to educate and empower patients, family members, doctors and researchers across the world.

Download your Patient Information Kit

The Patient Information Kit includes an overview of polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF), known collectively as myeloproliferative neoplasms (MPNs). It also contains information relating to caregiver resources, patient tool myMPN, the MPN Patients’ Bill of Rights and more. We encourage you to review these materials in addition to other resources available on our website.

Additional resources you may find useful include:

  • Living with an MPN – geared toward patients and caregivers, including next steps after a diagnosis, finding a support group, active MPN clinical trials to discuss with your doctor, and patient stories
  • MPN Research – for researchers and clinicians looking for grant opportunities, news about our annual Roundtable, MPN Interferon Initiative, science reports, and more

Please contact us at with questions or for more information.


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