MPNRUS

Contact: Joy Anderson

• Focus: All MPNs
• Email: mpnsrus@gmail.com 

• Facebook: https://www.facebook.com/groups/1016372925471211 

MPNForum

• Focus: All MPNs
• Facebook: https://www.facebook.com/groups/ourmpnforum/ 

MPN Humor

• Facebook: https://www.facebook.com/groups/171019526688237/?ref=gysj
• Focus: All MPNs 

MPN Life

Contact: Jeremy Smith

• Email: jeremysmith59@me.com
• Facebook: https://www.facebook.com/groups/215566128483803  

MPN Interferon Forum

• Facebook: https://www.facebook.com/groups/163047923897090/
• Focus:  Peer support and education about using interferon 

MPN Investigation & Discovery

• Facebook: https://www.facebook.com/groups/395227047729214/?ref=share
• Focus: All MPNs 

MPN Support Southeastern US

• Facebook: https://www.facebook.com/groups/mpnatlanta
• Focus: All MPNs in the Southeastern U.S.  

MPN Patients Association of Thailand

Contact: Pasusant Wattanaboonya 

• Email: pasusant63@gmail.com
• Facebook: https://www.facebook.com/mpnthailand  

Essential Thrombocythemia Supportive Friends Group

• Facebook: https://www.facebook.com/groups/456028451193700/?ref=br_rs  
• Focus: Essential Thrombocythemia patients and caregivers  

Essential Thrombocythemia Support Group UK

• Facebook: https://www.facebook.com/groups/270521603318784/?ref=br_rs  
• Focus: Essential Thrombocythemia patients and caregivers in the UK 

Women with Essential Thrombocythemia from around the world

• Facebook: https://www.facebook.com/groups/713159468806546/?ref=bookmarks 
• Focus: Women with Essential Thrombocythemia  

ET & MF / CALR mutation patients support group

• Facebook: https://www.facebook.com/groups/188986661472055/?ref=br_rs  
• Focus:  Essential Thrombocythemia or Myelofibrosis patients with a CALR gene mutation 

Essential Thrombocythemia Support Group

• Facebook: https://www.facebook.com/groups/249857971708809/
• Focus: Essential Thrombocythemia patients and caregivers  

Myelofibrosis Later Stage Private Support Group and SCT Survivors

• Facebook: https://www.facebook.com/groups/234449423345769/?ref=br_rs  
• Focus: Patients and their caregivers with Intermediate-2 or later stages of Myelofibrosis.  

Myelofibrosis Sharing, Caring and Support

• Facebook: https://www.facebook.com/MyelofibrosisSharingCaringAndSupport/?ref=br_rs  
• Focus: Myelofibrosis patients and caregivers 

Polycythemia Vera Support Group

• Facebook: https://www.facebook.com/groups/180180118669211/ 
• Focus: Polycythemia Vera patients and caregivers 

Polycythemia Vera (PV) Support Group Philippines

• Facebook: https://www.facebook.com/groups/176358693068487/?ref=br_rs  
• Focus: Polycythemia Vera patients and caregivers in the Philippines  

Polycythemia Vera Support Group

• Facebook: https://www.facebook.com/groups/PolycythemiaVeraSupport/?ref=gysj 
• Focus: Polycythemia Vera patients and caregivers  

Polycythemia Vera Awareness

• Facebook: https://www.facebook.com/PolycythemiaVeraAwareness/about?ref=page_internal  
• Focus: Polycythemia Vera patients and caregivers   

Poland- Myelofibrosis- our disease and that of our loved ones

• Facebook: https://www.facebook.com/groups/mielofibrozaPL?locale=pl_PL  
• Focus- Poland Myelofibrosis group