The path to an MPN progression registry — is it feasible?
Read the white paper
Our collaborative MPN Research Foundation and IQVIA white paper lays out the strategies we are leveraging to address MPN patient progression — just fill out this simple form.
MPN Research Foundation is actively pursuing this goal by building a patient registry that can capture the patient journey and MPN disease progression.
Building an MPN registry is a lofty goal that requires a clear vision to address challenges inherent to this patient population. Download our white paper detailing the background, approach, and our vision for building this patient registry with guidance from the experts at IQVIA.
The bottom line: MPN Research Foundation’s registry is being thoughtfully designed to address the significant challenges associated with MPNs.
MPN Research Foundation would like to thank Sobi for their support as the first sponsor of the forthcoming patient progression registry. Sobi’s backing will help move the registry forward, and drive clinical and patient care improvements for people living with these rare blood cancers.
Progression as a MPN Research Foundation focus
MPN Research Foundation is focused on helping researchers find meaningful answers to the questions surrounding progression. Our Progression Research Network (PRN) is a coalition of MPN physician-scientists and advocates working collaboratively to push progression research forward. Read more about how we got to this point and how the registry was conceived by the PRN.
Stay up to date on our progress
Watch this space and join our MPN Research Foundation community for regular MPN progression registry updates, as we work toward launch. We will provide details about how you’ll be able to participate and help MPN researchers find answers to important questions regarding disease progression.
