MPN patient guidelines updated by NCCN  

  • MPNRF | June 24, 2024

    To stay up to date on everything MPNs, patients and their families and caregivers have access to a just updated resource that includes 75 pages of plain language questions, answers, and explanations written specifically for people affected by MPNs. The comprehensive document is based on current clinical practice guidelines created by national leaders in the field of MPNs, and for the first time, a patient advocate representative.    

    These go-to guidelines reflect periodic reviews and updates by the MPN specialist panel of the National Comprehensive Cancer Network (NCCN), which includes more than 60 panels on different cancers. The 2024 NCCN Guidelines for Patients®: Myeloproliferative Neoplasms is available on the NCCN website. It can also be viewed, downloaded, and printed free here. And it is available at as a “book” for those who want to purchase a printed copy.  

    The guidelines cover the basics of each MPN – essential thrombocythemia (ET), polycythemia vera (PV), myelofibrosis (MF) – then go on to provide significant details in a number of informative sections, which include reproducible lists, questions, medical terms, treatment options, personal note areas, and more. And each section finishes with key points for a useful one-page summary. 

    To name just a few, the topics include: 

    • Symptoms and management options 
    • Testing for diagnosis and continued monitoring
    • Risk Evaluation systems
    • Prevention of complications
    • Making Treatment decisions
    • Questions to ask your car team
    • Supportive care to improve quality of life

    MPN Research Foundation is a proud supporting partner of NCCN and its MPN Patient Guidelines, including content contributions. 

    Certain medicines listed may not be approved by the US Food and Drug Administration (FDA) for myelofibrosis but are recommended by the National Comprehensive Cancer Network (NCCN). MPN Research Foundation works with NCCN on the creation and updating of its MPN Patient Guidelines.