PROGRAM DURATION:
July 2024 –
September 2026
FORMAT:
Live quarterly webinars & recordings on-demand
CERTIFICATION:
Certification received upon completion
Meet our expert speaker – Jane Perlmutter, Ph.D., MBA:
Jane Perlmutter is a long-term survivor of multiple cancers and a dedicated advocate whose work is shaped by her personal experiences, formal training in cognitive psychology (Ph.D.), computer and information science (MS), and business (MBA), as well as a career spanning academia, non-profit R&D, corporate leadership, and consulting. Early in her advocacy, she served as a peer counselor and board member for Y-ME, and as a grant reviewer for ACS, CDMRP, and PCORI. She has contributed to research from early translational studies to real-world data projects, with a current focus on clinical trials—ensuring the patient voice guides research priorities and protocols, and championing innovative trial designs that accelerate access to new treatments. She serves as lead advocate for the I-SPY2 and TAPUR Master Protocol trials and is a long-standing member of the Alliance for Clinical Trials in Oncology, as well as ASCO, National Academy of Medicine, and NCI committees. Beyond cancer, Jane works with numerous government and non-profit organizations, including as past chair of PCORI’s Patient Engagement Advisory Panel, a member of its Clinical Trials Advisory Committee, and a steering committee member for the Clinical Trials Transformation Initiative (CTTI). Passionate about developing future advocates and fostering collaboration with researchers, she has delivered training for many advocacy groups and served on the faculty of the ASCO/AACR Methods in Clinical Research Workshop and SITC’s SCION workshop. Her leadership has been recognized with the AACR Distinguished Public Service Award and ASCO’s Patient Advocate Award, both in 2023.
Key Learning Objectives:
Webinar Evaluations
Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.
- Session 1: Intro to MPN Research Foundation & MPN 101
- Session 2: The Lifecycle of Drug Development
- Session 3: MPN Clinical Trials 101
- Session 4: FDA 101
- Session 5: Patient & Caregiver Voices in Research
Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation
Q4 2024
Speaker: Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation
Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Recording / Evaluation
Q2 2025
Speaker: Sarah Wicks
FDA 101
Recording / Evaluation
Q3 2025
Speaker: Patty Spears
Patients and Caregivers’ Voices in Research
Recording / Evaluation
Q4 2025
Speaker: Dr. Jane Perlmutter, PhD, MBA
Clinical Trial Protocol 101
Registration / Evaluation
Q1 2026
Speaker: TBD
Informed Consent
Q2 2026
Speaker: TBD
A Patient’s Guide to Scientific Presentations
Q3 2026
Speaker: TBD
Patient-Reported Outcomes and Quality of Life in MPNs
The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy:
Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!
Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.
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