PROGRAM DURATION:
July 2024 –
September 2026
FORMAT:
Live quarterly webinars & recordings on-demand
CERTIFICATION:
Certification received upon completion
Meet our expert speaker – Emily Largent, JD, PhD, RN
Emily Largent, JD, PhD, RN, is the Emanuel and Robert Hart Associate Professor of Medical Ethics and Health Policy, Chief of the Division of Medical Ethics at the University of Pennsylvania, and a Senior Fellow at the Leonard Davis Institute of Health Economics, with additional affiliations across Penn Law and the Center for Health Incentives and Behavioral Economics. Her research focuses on the ethical and regulatory dimensions of human subjects research and the social, legal, and ethical issues that arise as research findings move into clinical care, with particular emphasis on neurodegenerative diseases such as Alzheimer’s. Supported by grants from the National Institute on Aging, Dr. Largent is a Greenwall Faculty Scholar (Class of 2023), recipient of the 2023 Baruch A. Brody Award in Bioethics, and an elected fellow of the Hastings Center. Her work appears in leading journals including The Hastings Center Report, American Journal of Bioethics, NEJM, and JAMA, and she co-authored Clinical Research Ethics Consultation: A Casebook (Oxford University Press). She holds degrees from Georgetown University, Penn Nursing, Harvard’s PhD program in Health Policy (ethics concentration), and Harvard Law School, and previously served as a fellow in the NIH Department of Bioethics and clerked for Chief Judge Jeffrey
Key Learning Objectives:
The core principles of informed consent
Strategies for clear communication about choices during the informed consent process
How patients can provide meaningful feedback during informed consent form development and review
Webinar Evaluations
Webinar evaluations will be posted here post event. Certifications will be issued after the last webinar once all evaluations been completed.
- Session 1: Intro to MPN Research Foundation & MPN 101
- Session 2: The Lifecycle of Drug Development
- Session 3: MPN Clinical Trials 101
- Session 4: FDA 101
- Session 5: Patient & Caregiver Voices in Research
- Session 6: Clinical Trial Protocol 101
Q3 2024
Speaker: Sara Douglas, MSN, RN, OCN
Intro MPN Research Foundation & MPN 101
Recording / Evaluation
Q4 2024
Speaker: Dr. Scott Weir, PharmD, PhD
The Life Cycle of Drug Development
Recording / Evaluation
Q1 2025
Speaker: Christina Persaud, RN, BSN, CCRP
MPN Clinical Trials 101
Recording / Evaluation
Q2 2025
Speaker: Sarah Wicks
FDA 101
Recording / Evaluation
Q3 2025
Speaker: Patty Spears
Patients and Caregivers’ Voices in Research
Recording / Evaluation
Q4 2025
Speaker: Dr. Jane Perlmutter, PhD, MBA
Clinical Trial Protocol 101
Recording / Evaluation
Q1 2026
Speaker: Emily Largent, JD, PhD, RN
Informed Consent
Registration / Evaluation
Q2 2026
Speaker: TBD
A Patient’s Guide to Scientific Presentations
Q3 2026
Speaker: TBD
Patient-Reported Outcomes and Quality of Life in MPNs
The MPN Pathways: Empowered Voices in Research Certification Program, made up of 9 expert-led webinar sessions, will be presented live every quarter through 2026. Participants will receive a certification upon completing the steps below, recognizing their commitment and expertise in MPN research advocacy:
Evaluations can be accessed via email after each live session or on MPN Research Foundation’s website. Upon completing all 9 sessions and evaluations, participants will receive an MPN Pathways: Empowered Voices in Research certificate via email to print and display proudly!
Important Note: If you cannot attend the live webinars, don’t worry! All sessions will be recorded and made available to you.