Celebrating the discovery of mutated CALR
What is
essential
thrombocythemia
(ET)?
Most commonly diagnosed in women over the age of 50, ET is associated with a proliferation of platelet precursors in the bone marrow and complications frequently include blood clotting and/or bleeding.
Learn more about ETWhat is
polycythemia vera
(PV)?
The disease is most common in men over the age of 60, but anyone can develop PV. PV patients typically experience an elevated red blood cell count, an elevated platelet count and an enlarged spleen, especially over time.
Learn more about PVWhat is
myelofibrosis
(MF)?
MF is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells.
Learn more about MFEvery patient experience is unique and provides new clues for researchers and clinicians.
In our 24-year history, MPNRF has contributed to some of the most influential MPN research discoveries.
Engage with us to ensure that new therapies have the maximum impact on patient outcomes and quality of life.
Download our Voice of the Patient report
Julie and her family joined team MPN and created HikeMF to join the fight against MPNs.
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Need help with MPN related out-of-pocket expenses?
MPN NEWS | June 25, 2024
Need help with MPN related out of pocket expenses? The PAN Foundation is helping patients with Philadelphia chromosome negative myeloproliferative neoplasms (MPN) afford their out-of-pocket costs. If you’re a patient or caregiver looking for resources to help with your treatment-related costs, we encourage you to learn more about the PAN Foundation and its $3,250 annual… Read More »Need help with MPN related out-of-pocket expenses?
MPN patient guidelines updated by NCCN
MPN NEWS | June 24, 2024
To stay up to date on everything MPNs, patients and their families and caregivers have access to a just updated resource that includes 75 pages of plain language questions, answers, and explanations written specifically for people affected by MPNs. The comprehensive document is based on current clinical practice guidelines created by national leaders in the… Read More »MPN patient guidelines updated by NCCN
Vikas Gupta, MD, FRCP, FRCPPath
MPN NEWS | June 24, 2024
Profile: Vikas Gupta, MD, FRCP, FRCPPath Princess Margaret Cancer Centre University Health Network, Toronto, Canada How can we best study transplant vs best available non-transplant therapies in myelofibrosis patients? According to Dr. Vikas Gupta, studies have shown that high-risk myelofibrosis (MF) patients appear to have better survival with hematopoietic stem cell transplants (HCT) than with… Read More »Vikas Gupta, MD, FRCP, FRCPPath