• MPNRF | April 30, 2020

    Thank you for joining us on our new website, or what we did this summer. Please take a look around, try out some of the new features and let us know what you think. Our goals during development were to offer more and better information and access for MPN patients, their families, friends, and doctors. Our site is meant to be a hub where you can get the latest research and community news, find out what the MPN Research Foundation is up to in terms of research funding and advocacy work and connect with our diverse partners.

    Some notable new features to check out are:

    10 steps every MPN patient should take

    Expanded information on each ofthe MPNs we cover (polycythemia veraessential thrombocythemia and myelofibrosis)

    Real patient stories

    Improved functionality of Clinical Trials and Patient Support Group pages

    We want to thank our Website Committee and Walker Sands. We’re proud of what we’ve done with the site but want to know what you think. Either if we’ve missed something or impressed you we want to know. Drop us a line at to make your voice heard.