• MPNRF | April 30, 2011

    MPN patients can face financial hardships in addition to, or because of their diagnosis of ET, PV or MF. From the impact of having less energy to work full time, to wanting or needing to hire help with household tasks, to the high cost of copays or insurance, it can have a great financial toll on a person living with an MPN. While the Foundation does not have a program to assist with expenses, there are several organizations linked below that can help patients cover the costs of treatment.

    If you are a Polycythemia Vera, Essential Thrombocythemia, or Myelofibrosis patient who is on a drug that has been approved by the FDA for use in an MPN but need assistance paying for or obtaining medication read below for links to organizations that may be able to help.

    If you are a Polycythemia Vera, Essential Thrombocythemia or Myelofibrosis patient who is on an off-label drug, or a drug that has not been approved by the FDA for use in an MPN, & need help obtaining insurance coverage for your medication click here.

    Bristol Meyers Squibb Patient Assistance Foundation (BMSPAF) is an independent, charitable organization that helps eligible patients who need temporary help obtaining the medicines listed on their website including Inrebic® (fedratinib), Eliquis® (apixaban), Reblozyl® (luspatercept-aamt), Thalidomid® (thalidomide) and Onureg® (azacitidine).

    CancerCare offers co-pay assistance for patients with Myeloproliferative Neoplasms. The fund is limited to patients with an adjusted gross household income at or below 500% of the federal poverty level and insured through a federal health care insurance program such as Medicare, Medicaid or TRICARE that is covering a portion of the cost of the medication prescribed to treat the patient’s primary cancer. Some patients with private insurance could be considered if they live in a state that excludes beneficiaries from participating in a manufacturer drug assistance program.

    Cancer Support Community ensures that people impacted by cancer are empowered with knowledge, strengthened by action and sustained by the community. They have an online community and provide phone support to patients. The organization is also involved in advocacy and the Cancer Policy Institute brings together patient advocates and policy experts to effect policymaking.

    Good Days provides financial support by covering prohibitively costly co-pays for those with life-altering conditions, allowing them to receive treatment without destroying their finances. We even offer, in some cases, additional financial assistance for health insurance premiums and treatment-related travel expenses.

    Incyte Cares offers compassionate care programs for Jakafi for both people with coverage and those without coverage. Click here to download the brochure.

    Lazarex Foundation provides support for cancer patients who need help navigating clinical trial options or financial assistance to attend a clinical trial. Their patient navigator can help you find the right clinical trial and can help with the costs associated with participating in a clinical trial, including transportation (airfare, gas, rental cars, taxi fare, parking/tolls), lodging (short- and long-term housing) and certain medical expenses not covered by insurance and necessary for clinical trial treatment.

    Mercy Medical Angels provide FREE transportation nationwide to and from medical care for qualifying in-need individuals and their families.

    Patient Access Network (PAN) Foundation – PAN Foundation offers co-pay assistance for patients with ET, PV, and MF. Click here to apply online or call 1-866-316-PANF (7263).

    Patient Airlift Services (PALS) is a nonprofit that arranges free flights for patients requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially. PALS also arranges volunteer flights for family members of patients as compassionate missions, to ensure patients have support when they are away from home for long periods.

    PharmaEssentia is the company that developed Besremi®. They have a website for patients which includes a phone number for anyone with questions about the cost, access or use of the new treatment. Visit PharmaEssentia SOURCE™ .

    The Leukemia Lymphoma Society (LLS) offers assistance to patients with blood cancers, including patients with myeloproliferative disorders.  They make available Financial Aid for patients in active treatment, Co-Pay assistance, Education, Family Support Groups, and patients travel assistance.

    The Cancer Financial Assistance Coalition helps cancer patients manage their financial challenges by: helping members communicate and collaborate, educating patients and providers about resources and links to other organizations that provide information about C-FAC’s resources, and advocating for cancer patients regarding the financial burdens of cancer care.

    Ultimate Guide to Financial Resources for Cancer Patients an in-depth money-saving moves guide for cancer patients created by Coupon Chief. If you or someone you know is facing cancer, it’s crucial to know about the many resources available to you. Continue reading this guide for details on the anticipated costs of cancer, how to deal with them, and which resources you can access to get the care you need.

    Other Helpful Organizations – LLS is pleased to offer an extensive directory of national and international resources. These organizations can help with cancer-related issues like financial assistance. Click here to discover all that is offered.