Find a hematologist

How to find a hematologist that is right for you

Finding the right doctor is never easy, especially for people who have been diagnosed with a myeloproliferative neoplasm (MPN). Your general practitioner may have never seen a case of MF, ET, or PV. And, your local hematologist may have limited firsthand experience with MPNs.

However, as an MPN patient, it’s critical to find a healthcare practitioner who understands your disease. At some point, you will need to be seen by a physician who specializes in myeloproliferative blood disorders.

To locate a hematologist that specializes in MPNs:

While it’s important to find a hematologist that understands the various approaches to managing an MPN, you should also relate to your physician on a personal level. If you feel like you need a second opinion, you should not hesitate to seek one.

Questions to ask your hematologist

After you have identified a hematologist that may be right for you, the next step is to ask the right questions. A brief selection of questions you should ask your hematologist include:
  • What is my exact diagnosis?
  • Did I test positive for any mutations? What kind of genetic testing can you offer me?
  • What is my plan for managing this in the short and long term?
  • What kinds of clinical trials, if any, am I qualified for?
  • How many MPN patients do you treat now?
  • What kind of lifestyle changes should I make to deal with symptoms?
  • What treatments am I a good candidate for, and why?
  • What are the side effects of my treatment options?
  • If you are of childbearing age, how should I manage my family planning? Should I be using birth control? Should I stop using birth control?
  • What should I tell my immediate family about how this will affect my life and theirs?
Suggest any additional questions that you’ve found helpful to ask your hematologist here.

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