BLOOD CANCER AWARENESS MONTH 2019
September provides the MPN community a unique opportunity to draw attention to polycythemia vera, essential thrombocythemia, and myelofibrosis by celebrating nationally recognized Blood Cancer Awareness Month.
For BCAM 2019, MPNRF will be shinning a light on MPN’s emotional and physical symptoms that are often “invisible” to the outside world. So, be sure to keep an eye out for our posts on social media and emails hitting your inbox because throughout September we will have a lot of educational information and exciting updates to share with you!
We’ve come a long way in our 19 years of funding MPN research, but we didn’t get here without the input and support of patients and their friends and families. So, keep educating yourself and become a champion for MPN patients everywhere by supporting research, sharing your story, or participating in research. With your help, we will one day see a cure.
Here’s how YOU can help during BCAM
DONATE
Make a gift in honor of BCAM and encourage your network of friends and family to do the same. All funds raised during BCAM will directly support MPN researchers who are looking for new treatments and a cure.
USE OUR TWIBBON
To raise awareness for MPNs, we’re asking you to show solidarity with the hundreds of thousands of people diagnosed with PV, ET, & MF by adding our Twibbon to your profile picture on Facebook, Instagram, and Twitter.
SHARE YOUR STORY
Share your personal story and use the hashtag #MaketheInvisibleVISIBLE and #MPNRF so that those living with MPNs know they aren’t alone. If you feel comfortable talking about your experience, email us or add it on social media so we can all lean on each other!
UPDATE OR REGISTER IN MYMPN
By joining MPNRF’s patient registry, myMPN, and consistently updating your profile, you will be directly impacting research & expediting the development of targeted disease therapies! The good, the bad, the ugly. We want to hear it all!
