Patient Support Groups

Patient Support Groups

In the fight against blood cancer, research and support can make all the difference while we fight to find better treatments and a cure. While we are waiting you need a partner to get you through. MPN Research Foundation is there for you, not only funding research that is moving the science forward, but also connecting you to information and other people who are going through this same experience. Please take a moment to get the support you need.

Outside U.S./Canada

Find support in your country here: Link

Don’t see a group in your area? Please email patientengagement@mpnrf.org.

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U.S./Canada

MPN patient support groups are opportunities which meet to learn and network with other patients and caregivers. We have compiled a list of United States and Canada based support groups below.

  • Vancouver

    Group: BC MPN Patient Support
    Contact: Mark Williams
    Email: vancouver@canadianmpnnetwork.ca
    Focus: All MPNs
    Virtual (Zoom) 

    US-All (Nationwide)

    Group: Utah LLS MPN Support Group/Colorado Blood Cancer Institute
    Contact: Daniel Weinshenker or Dawn Guerrero
    Email: Dawn.Guerrero@lls.org
    Focus: All MPNs
    Virtual (Zoom)  

    North Texas

    Group: North Texas DFW MPN Patient Support Group 
    Contact: James Livermore or Andrea Spica
    Email: jlmore2@gmail.com or  Andreaspica@gmail.com
    Phone: 1 (806) 790-3454
    Focus: All MPNs
    Virtual (Zoom) 

    US-All (Nationwide)

    Group: Pittsburgh MPN Support Group 
    Contact: Jean Diesch
    Email: mpn.pgh.sup@gmail.com
    Phone: 1 (724) 831-0368
    Focus: All MPNs
    Hybrid (In-person at Allegheny General Hospital with virtual option)  

     

    Bossier City

    Group: Blood Cancer Support Group 
    Contact: Deja Bowen
    Email: DBOWEN@WKHS.COM
    Phone: 1 (318) 212-8026
    Link: https://www.wkhs.com/classes-and-events/support-groups/blood-cancer-support-group
    Focus: All Blood Cancers
    In-Person at Willis-Knighton Cancer Center 

    Central Florida

    Group: MPN Support Group-Central Florida 
    Contact: Natasha Johnson
    Natasha.Johnson@moffitt.org
    In-person at the Lakeland Public Library 

    Boise

    Group: Idaho MPN Support Group  
    Contact: Jena Brydson
    Email: JABrydson@gmail.com
    Phone: 1 (208) 412-3039
    Focus: All MPNS
    In-Person  

    New York City

    Group: NYC+ MPN Support Group  
    Contact: Jo Ann Mannino
    Email: Joann.Mannino@gmail.com
    Phone: 1 (347) 752-0939
    Focus: All MPNs
    Virtual (Zoom) 

    Houston

    Group: MPN Support Texas 
    Contact: Tina Cooper
    Email: tina_cooper@entouch.net
    Phone: 1 (713) 805-0611
    Link: https://www.facebook.com/groups/MPNSupportTX/
    Focus: All MPNs
    Hybrid (In-person with virtual option) and Facebook Group  

    Ontario

    Group: MPN Ontario 
    Contact: Joanne McKinley
    Email: mpnontario@gmail.com
    Focus: All MPNs
    Hybrid (In-person and virtual option (Zoom))  

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