There are sometimes surveys and studies beyond clinical drug trials looking for input from people living with essential thrombocythemia, polycythemia vera and/or myelofibrosis. We list these as a service to patients who may be interested in participating, and not as an endorsement of a specific research project.

The MPN Family Study  –  We know that myeloproliferative neoplasms may occasionally run in families, but what we don’t know is why. The Fleischman Lab, headed by Dr. Angela Fleischman, MD. PhD. in Irvine, CA is seeking to answer that question. Through the MPN Family Study, Dr. Fleischman is working to identify why some families are more likely to get MPN and potentially use that information to develop ways to prevent it.

How does it work, you ask? The study is seeking families that have at least two people with an MPN and/or another blood cancer. You begin with a short online survey of your personal and family medical history, followed by a blood draw at your local lab. It is important that the blood of both the affected and unaffected family members are examined so it can be tested for a variety of mutations.

So, if you belong to a family that meets the criteria above, we encourage you to participate! MPN families are the key to uncovering what predisposes people to develop MPN and with your help, we can unlock these important answers. For more information click here or email